Levon is Special Because….
He’ll never let a little thing like a diagnosis of a rare genetic disorder stop him – or dampen his day!!
Though he struggles to do even the simplest things that his fraternal brother can do, he tackles every challenge, determined and with a smile. He is unstoppable.
Levon loves music and wind spinners and always has a special “happy dance” whenever he hears music or is captivated by a wind spinner.
He is super social and loves to engage with people and make them smile.
It take so much more effort for Levon to do things throughout his day – but he is such a champion and floors me daily with how much he can accomplish.
Most recently, he sat down with me for the first time with his eye-gaze device and looked at me, and then the device and communicated, “Hello Mom, Hello Mom!”
I cried – happy tears.
Levon is Special because he teaches me so much.
He teaches me to be present. To cherish every moment – every second.
He teaches me patience and perseverance.
I can honestly say, because of him, I am a better human being and a better mother.
Because of Levon, this world is a better place – with a little more light and a lot more joy!!!
Cherish every moment with your child, and help other parents cherish their own moments! Share your stories about what makes your child special and encourage other moms.